I CAN’T TELL YOU

This past week I had a new floor installed and said goodbye to the black and white dining room floor that was one year younger than me. (I am visible in the mirror at the end of the hallway)

This past week I had a new floor installed and said goodbye to the black and white dining room floor that was one year younger than me. (I am visible in the mirror at the end of the hallway)

My post title is a lyric line from my song “Memory of Love.” That song fits perfectly into my life right now and I recently completed a brand new arrangement for it. I plan to write more about it soon but am excited to share it now because it goes so well with this story.

Link to my story and song “Memory of Love” 

Story behind MEMORY OF LOVE-PART 1

My mother’s fade into dementia was the catalyst for my “rebirth.” She was my best friend and support system. When she became sick, everything shifted and suddenly I was the “adult.” This transition was initially shocking, but eventually I needed to take control of my own life.

I dedicated myself completely to keeping my mother comfortable while she declined mentally and physically. Yet even though I was a devoted daughter, I still carry a lot of guilt. The line of “I Can’t Tell You” is part of a longer phrase of:

I can’t tell you so instead I just pretend, it’s easier that way . . .

That line was written when I was filled with disbelief that my mother was more and more frequently making nonsensical statements due to the rapid onset of dementia. But this story is not about that. It is related to how until my mother passed away at the age of 88, I was unable to share with her that I did not faithfully observe any of the religious rules that were sacred to her. I often felt compelled to lie about it because it was so uncomfortable for me.

The coop where I’m now living was built in 1960; I was one year old when my parents moved there.

The coop where I’m now living was built in 1960; I was one year old when my parents moved there.

I love what I have gained through hypnotherapy and appreciate the tremendous progress I’ve made. Every “baby step” is something I celebrate.

For most of my life, I wasn’t able to separate my own beliefs from my parents. I’ve had great difficulty speaking up for myself. In some ways, that sounds ironic because I was an excellent advocate for my children and parents (while they were alive.) I can express myself through singing songs with heartfelt lyrics, but in many other situations I’ve held back my true thoughts and deemed my own feelings to be less important. Wanting to be “loved” by doing the “right” thing came with a very high price for me.

When I moved back to my childhood home two years ago, I never could decide what colors to use with the black and white floor.

When I moved back to my childhood home two years ago, I never could decide what colors would go well with the black and white floor.

At my last hypnotherapy session, I opened up to talk about the guilt I’ve carried for many years over disappointing my mother because I wasn’t an observant Jew like she was.

I told my hypnotherapist, Connie, that it would be very uncomfortable for me to even write about this subject on my blog. I felt ashamed and didn’t want any of my religious friends or family members to be disappointed in me.

Our wonderful session actually led to a lot of inner exploration that I found to be very helpful. Connie pointed out to me that I wasn’t alone with my feelings; people from other religions carried guilt, too.

I even have a picture of my childhood dog, Teddy, enjoying that floor.

I even have a picture of my childhood dog, Teddy, enjoying that floor.

I was tempted to write a Princess story using metaphors. My last Princess parable ended with her triumphing over the Dark Witch of guilt.

I don’t want the “Dark Witch” to torture me anymore and could write a great story that way. But instead I left our session and decided I could write my honest feelings without metaphors.

The installation of the new floor ended up taking two days because the kitchen needed a new sub-floor.

The installation of the new floor ended up taking two days because the kitchen needed a new sub-floor.

It has been exactly two years since I moved from a large home that I lived in for 18 years. I left my husband after a long marriage; all three of my children lived with me in my 2 bedroom coop for some of that time. Currently, my two sons are still with me.

I stepped into the unknown and made the decision to live in this place where I grew up. My father had just died and my mother was in a nursing home. It belonged to my two brothers and I; instead of selling it, I paid my brothers their share and moved in. It certainly was an affordable option and was only two blocks from my youngest son’s school.

I have plenty of memories of growing up in this coop where I now live.

I can look out at my overgrown patio and see myself engaged in a lively Ping-Pong game with my brother. I easily remember how my heart would pound when I hid in the bushes during a serious game of hide-and-seek. I pass those bushes every time I walk to my car. Whenever I look at my old bedroom, I can picture the tents I used to invent by using bed sheets and clothespins. Sweet memories happen when I allow them.

Lately I feel very disconnected from my past, almost like a person with amnesia. I’ve tried to discard any past memories that are painful and my new existence is quite different from what I ever imagined.

The memories that surround me and I avoid, involve my mother preparing for the many Jewish holidays she was passionate about. It isn’t because those memories aren’t beautiful – but they trigger my guilty feelings.

This is such a change because I used to hold tightly onto memories. Memories of love sustained me but unfortunately, guilt has become a barrier to this. And guilt is a companion to resentment.

For most of my life, I have spent a lot of energy worrying about disappointing other people. This left me with a lot of subconscious resentment and confusion. My ultimate guilty act was when I shocked my husband and ended our marriage after 30 years.

Freedom to express myself is terrifying but at the same time a necessary basis for my new life.

Beliefs are not concrete and everyone has their own. Here’s one of my beliefs: In order to make way for something new, sometimes it is necessary to experience some discomfort first.

Beliefs are not concrete and everyone has their own. Here’s one of my beliefs: In order to make way for something new, sometimes it is necessary to experience some discomfort first.

If ever there was anything symbolic in my life, it was my decision this past week to replace the 54-year-old floor in my coop. When I was an infant, I crawled upon that floor. So did all four of my children whenever they visited their grandparents.

That floor always reminded me of a 60’s diner – I never liked the black and white linoleum. More than anything, I’ve often felt that black and white represented the extreme thinking I was raised with.

Black & White linoleum

I loved my mother and considered her my best friend. I was her universe and she lived to hear about everything going on in my life. But I was careful about what I shared with her.

As a young girl, one day I discovered that I was not exactly like my mother. It was such a painful realization.

My mother was a very observant Jew and ruled our household. My father followed her and my brothers and I were raised with strict adherence to Conservative Judaism. We were not Orthodox – yet, my mother was unwavering in the laws she chose to follow. There was a “right way” to do things and anything else was bad and “wrong.”

I want to share an example of a moment that represented my awareness that something didn’t quite work for me. I had never even realized it until then.

I was about 14 and a counselor-in-training for a day camp at our temple. The table was set for a special meal, but first a blessing needed to be said. A young camper was sneaking bites when he wasn’t supposed to. I tapped him gently and told him something I had heard many times before from my mother. I said, “God is going to punish you for that.”

A little while later, I was taken aside by the head counselor. She said, “What did you say to David? He is hysterical and says that you said God is going to punish him!”

At that moment, I began to think about what simply had sprouted from my mouth. It was very unpleasant and I was ashamed at myself for what I had said.

I do not dislike my religion. I shared as much as I could with my children while they were growing up; they even complained to me about it. But the rituals and observance, which brought my mother so much comfort hasn’t been something I’ve wanted to deeply embrace.

Many years ago, there was a time when my middle brother confessed that he had gone to work on the second day of an important Jewish holiday.

My mother screamed and screamed at him, until my brother broke down crying. He was in his 20’s at that time and he promised her he would never do it again. It was a very traumatic thing for me to have witnessed. My brother did not keep his promise, but unfortunately that memory is imprinted in my mind.

After seeing how my mother screamed at my brother, I was terrified of disappointing her – understandably. So I lied to her about what I was doing on important Jewish holidays. It was easier than telling her the truth.

But there was a time when I found incredible courage.

When I was in my mid-twenties, I sought out therapy to help me deal with my depression and confusion. My parents attended a session with me and I expressed my feelings about many things. I told them that moving forward I was going to do things differently. I would no longer attend the same temple services with them every year and didn’t want my mother to buy me kosher meat anymore.

I Can't Tell You

Many years later, my mother was very angry that I scheduled my 5-year-old son, Jason’s heart surgery the day before Yom Kippur, a major Jewish holiday. I had very few options besides that date and went ahead with it. Jason died following that surgery, which was a horrible outcome.

I wish I had covered things because there was a lot of dust everywhere.

I wish I had covered things because there was a lot of dust everywhere.

I hate feeling guilty about anything. Intellectually, I know that I am entitled to make choices about how I want to live my life.

That was why it was so interesting how I planned to put in a new floor last week. The day that the installer gave me was Thursday. It wasn’t until the day before that I learned it fell on the Jewish New Year.

It was very dusty as the workmen demolished concrete in my kitchen. My eyes didn’t like the dust, even though I was in my bedroom with the door closed. I heard my mother telling me that what I was doing was wrong, wrong, wrong. I didn’t feel well at all.

This was a perfect opportunity for me to leave black and white behind. I’m a 54 (soon to be 55) year-old woman who has begun a new life. I don’t want to dwell on sadness from my past anymore, nor am I planning for a future of fame and fortune.

I am very pleased with my new floor. It has many subtle variations of grays and browns. It is neutral and soothing for me.

I did brighten up this photo a bit. I noticed that the lighting affects the color. In the kitchen with fluorescent lighting, the floor appears to be a different color!

I did brighten up this photo a bit. I noticed that the lighting affects the color. In the kitchen with fluorescent lighting, the floor appears to be a different color!

When I moved in, I was very excited to refinish the hardwood floors in the other areas of this coop. For 50 years those floors were hiding under carpeting and it was beautiful to see them revealed. My parents preferred carpet to hardwood, but I am enjoying this alternate floor. It’s my preference.

That old black and white dining room floor worked well for my parents but now I get to choose what I want and that includes religion, too.

I’ve noticed that when I acknowledge guilty feelings – it becomes easier to let them go. With that release, suddenly the beautiful memories filled with love reappear.

But most of all, I want to move forward to create new memories.

In this picture, I am celebrating with my daughter who turned 21 two weeks ago. I am so proud of her and my two sons. I’ve had the pleasure of watching all three of my children grow and develop into beautiful humans right in front of my eyes. My children mean everything to me.

In this picture, I am celebrating with my daughter who turned 21 two weeks ago. I am so proud of her and my two sons. I’ve had the pleasure of watching all three of my children grow and develop into beautiful humans right in front of my eyes. My children mean everything to me.

In two weeks, it will be the first anniversary of my mother’s death. Even though I don’t want to remember her dying moments, my subconscious continues to play them for me.

The seasonal change from summer to fall has begun and that always reminds me of Jason’s death. It has been many years now and I have healed from the agony I used to suffer with.

I have a 7-inch scar from when Jason was born by emergency C-section in 1987.

The strangest thing happens for me with that scar. I never notice it except that sometimes it itches like crazy. It happened today and I don’t think it’s just a random thing. It strangely happens whenever an anniversary of the heart is approaching.

That is my grief.

It is an itch – I can mindlessly scratch it, but it doesn’t bring relief – it just bothers me more. I can’t ignore it.

If I concentrate hard, it stops itching. I think about how much I will always love him.

I’ll never forget Jason; he is my angel.

Jason on black and white floor

© Judy Unger and http://www.myjourneysinsight.com 2014. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Judy Unger with appropriate and specific direction to the original content.

Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 4 Comments

MY JOURNEY IN SIGHT – PART 9

This painting was a watercolor exercise I did over 30 years ago that became a terrific addition to my portfolio. Unfortunately, I never like illustrating beverages.

This painting was a watercolor exercise I did over 30 years ago that became a terrific addition to my portfolio. Unfortunately, I never liked illustrating beverages.

It happened during an ordinary day. I was driving somewhere and suddenly I realized that my eyes didn’t hurt.

I blinked a few times and was so grateful that my eyes felt “normal.” Then I noticed how much better my vision was without the fog related to having dry eyes.

I was so happy that I began to cry. I whispered a thank you to God for this blessing.

Although I had some foggy and irritated sensations in my eyes later that day, whatever discomfort I experienced was manageable. Now I knew that my condition wasn’t going to be something that would torture me forever. My faith in healing was confirmed!

Healthy Food 2

This gives me an opportunity to share some very old illustrations done for a hospital nutrition brochure.

This gives me an opportunity to share some very old illustrations I painted for a hospital nutrition brochure back in 1984.

A few weeks ago I made a major commitment to follow a healthier path. I stopped eating whatever I felt like; I was so tired of beating myself up about it.

I made healthier food choices and suddenly, everything started tasting better. Even an apple was more enjoyable than the chocolate I used to snack on.

Which one would you rather have? Seriously, I am choosing the apple because I have made a commitment to get healthy!

Which one would you rather have? Seriously, I am choosing the apple because I have made a commitment to get healthy!

I joined a YMCA and began swimming laps a few times a week. On the other days, I fit in a half-hour walk. I continued to play tennis and went from once to twice a week.

All of this certainly helped my mood but I wasn’t sure if it was going to help my eyes.

But then my eyes began to improve. Because I always hear my lyric lines running through my life, I share with humor one that came to mind with my first huge change. The words in my head were: “My life became clear.”

It was because I started drinking a lot of water!

B&W Glass close up

I’m not sure how many glasses I gulped down exactly, but it definitely totaled over the recommended 8-10 glasses a day. I gave up the iced tea with a lot of artificial sweetener, which was certainly not very good for my body either.

Tea Leaves

Only the week before, I had gone to my hypnotherapy appointment with a stack of pages related to dry eyes. I told Connie (my hypnotherapist) they were sent to me by a wonderful woman who had reached out to me. Her name was Judi, and she was the leader of a dry eye support group. I wished her group meetings were closer because unfortunately the group met about 2 hours away from where I lived.

Connie glanced at the many pages I stuck in front of her. She pointed to one of them and said, “It says right here that drinking water is very helpful for dry eyes.” She paused and then said emphatically, “You know, drinking water might not only help your eyes; it’s beneficial for weight loss and your overall health.”

Connie pointed to a metal bottle filled with water right there next to her. She shared how she worked hard to drink a lot of water every day.

I listened and my mind was open to it. Why not? I left that appointment and made a commitment to Connie that I’d try to drink a lot more water.

During that next week, drinking water became my new habit.

I was running to the bathroom a lot and it made me think of a poem I had written with a new title. Instead of “My Tears Filled an Ocean,” my new poem was “My Pee Filled an Ocean!”

Okay, so my illustration might not be water exactly.

Okay, so my illustration might not be water exactly.

It was a beautiful summer morning. A week had passed and I was so excited to see Connie for our appointment. I couldn’t wait to share with her how much my eyes had improved. In addition to drinking a lot of water, I had done another remedy at night that Judi had recommended. I will share more about that on my next post.

I’m not really missing the iced tea I just to drink all day long.

I’m not really missing the iced tea I used to drink all day long.

I sat down and was beaming. I smiled and began our session by lifting my guitar out of its case.

A wonderful blessing had come to me. A few days earlier, shortly before I had begun to feel better, I had started hearing a new song. The joyful melody danced in my mind and the chords were very sweet. This song sounded so different from the last few songs I had written.

It seemed like my music was a reflection of my healing.

In the quiet of Connie’s guesthouse I fingerpicked the sweet chords swiftly and sang la la’s with joyful exuberance.

When I finished and said to her, “I can’t believe since last week how this song appeared. It’s amazing!”

Connie nodded and agreed that indeed it was amazing. She was always very impressed how I remembered the fingerings for so many songs, especially new ones. Remembering lyrics and chords for all my songs definitely takes up a lot of space in my mind; there is considerable memorization involved.

Our session was uplifting and I felt like I was glowing as I drove home. Things were definitely on the up and up for me; I was so grateful once again for the blessing of music in my life.

I have begun writing the lyrics for my new song.

I have begun writing the lyrics for my new song.

I began arranging my new song with George, before I even had words for it.

This song was all about joy. I felt inspired because of the many wonderful things that were happening for all three of my children.

I decided to name my song, “Watching You Grow.”

Below is my arrangement in progress:

WATCHING YOU GROW – Arrangement in Progress

The miracle

© Judy Unger and http://www.myjourneysinsight.com 2014. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Judy Unger with appropriate and specific direction to the original content.

Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 3 Comments

MY JOURNEY IN SIGHT – PART 8

A month ago, I met a good friend at Descanso Gardens. I didn’t take too many photos because the sunlight bothered my eyes. Seeing the beautiful images I did capture that day remind me of how blessed I am to have my eyesight and my wonderful friend, Carol.

A month ago, I met a good friend at Descanso Gardens. I didn’t take too many photos that day because the sunlight bothered my eyes. This image reminds me of how blessed I am to have my eyesight and my wonderful friend, Carol.

For a week after using the serum tears, I was deeply depressed. My eyes hurt and my vision was foggy even though my eye doctor said my eyes looked “fine.” I began to lose hope of ever conquering my dry eye condition and reclaiming the “normal” eyes I once had.

I had definitely lowered the bar a while ago. This wasn’t about acuity (vision); it was about living with discomfort and constant pain. I could accept poor vision, but not pain.

My online dry eye support group knew exactly how I felt. I plan to write more stories about this group. It is comprised of men and women, young and old. One woman has lived with her condition over 25 years already. Many of the new members want to pull their eyeballs out!

What I continue to find so beautiful, is how this group is filled with hopefulness. When someone is overwhelmed, another member suggests things that might help him or her.

]

After my serum tear fiasco, I poured out my heart and received many caring and concerned messages.

My new friend from this group named Susan was very appreciative of my story. She had just gotten a prescription for serum tears because I had encouraged her to push her doctor for it. Now she wasn’t sure whether to try them after hearing about what I had experienced.

Susan and I began writing daily and I was touched by how caring she was. It turned out that she didn’t live too far from me. That was amazing since the online group was international. Susan had suffered with dry eyes for about ten years. She had attended several meetings of a dry eye support group in Orange County, which was about two hours from where we lived. The leader of that group was a very knowledgeable person and quite willing to help others. Her name was Judi.

Susan had recently spoken with her and shared my story; now Judi wanted to get in touch with me.

I was open to it.

Judi began by emailing me a ton of literature and eventually we spoke for an hour on the phone.

Her messages resonated with wisdom, knowledge and incredible compassion. If I allowed an image to form, it would be of seeing myself lying on the ground. Suddenly gentle hands caressed me and sweet messages of hope were whispered in my ears. With the help of those hands, I managed to pull myself back up.

What stood out to me in Judi’s messages were several things. Certainly she had an incredible amount of knowledge. But what really helped me was when she acknowledged the psychological impact of my condition and reassured me that I wasn’t going crazy.

You are not crazy or a hypochondriac; they just don’t have the answer or know how to treat you. God can make a way when it seems there is none. Don’t give up.

And her mentioning God really touched me.

No one can understand how bad the pain of dry eyes can be unless they have experienced it. We have more nerves in our eyes than anywhere else in our bodies. I can remember a young man, many years ago that wanted to have his eyes removed because the pain was so bad; he was in his 30’s. That was so very sad and I wonder whatever happened to him.

I have also struggled with anxiety and depression my whole life, especially after the age of thirty. I have recently learned that anxiety and depression makes the pain of dry eyes worse – and the pain of the dry eyes makes the depression worse. It is a vicious cycle.

I can say that my struggle started 14 years ago and my eyes are better now than when I started but also I have learned to be much more proactive in treating them. It always drives me closer to God, to depend and trust Him – to spend time with Him – to be grateful for His grace and faithfulness in all areas of my life.

Judi

After about two weeks, my eyes recovered. They weren’t “normal,” but perfectly adequate for all the things I do. The pain subsided and helped me appreciate how much better I was. I was relieved that I was able to perform at my niece’s wedding above.

After about two weeks, my eyes recovered. They weren’t “normal,” but perfectly adequate for all the things I do. The pain subsided and helped me appreciate how much better I was. I was relieved that I was able to perform at my niece’s wedding above.

Twenty years ago, I helped bereaved parents, siblings and grandparents as a support group leader for an organization named Compassionate Friends.

Whenever I have written about the things that helped me to survive my grief, I usually mention how I benefitted from support groups. “Hold hands with other people who are also suffering. Take baby steps together,” is often how I frame it.

It seems like I followed my own advice when my dry eye condition began to overwhelm my life.

Coral Rose close up

One of the hardest things for me as a leader at Compassionate Friends was helping the newly bereaved.

They were in shock, bewildered at how their “normal” life had suddenly disintegrated. The grief journey they were beginning seemed like a horror they could never survive and dying to join their loved one seemed far easier.

Part of reason it was so difficult for me (back then), was because I was on the same journey and I couldn’t really say that it would get “better” with honesty. The journey from where the hell began was arduous and excruciatingly slow. The best that could be hoped for was to hold hands with others and hang on.

What I gained from helping other people with grief was a sense of purpose. It made me feel that all of the suffering I went through strengthened me. Now I could do something useful, my son was an “angel on my shoulder,” hugging and holding me as I comforted other people.

These are lyrics from my song “Wonder Why.” I recently finished the vocal and guitar additions for my song.

These are lyrics from my song “Wonder Why.” I recently finished the vocal and guitar additions for my song.

It was when Judi reached out to help me that I realized how I was getting something back for all that I had given.

The experience was quite spiritual for me.

As horrible as bereavement was, I have looked at it as a pathway toward enlightenment. Grief took me away from God and eventually I found a way back. I try not to imagine that God orchestrates all the misery in this world. Because of my eye pain, I know I have gained far more compassion and depth.

I know that things could be worse and things could be better. The number of painful diseases that exist in this world are endless and I cry for anyone who suffers. Even with dry eye disease, there are people whose eyes are disfigured and scarred, who cannot drive or face daylight at all.

So many things happen in life that I do not understand. For myself personally, I strive to stay positive as I follow my dream.

I keep smiling and there’s a reason for that. It’s because my eye pain has not stopped me from arranging songs, recording vocals and writing new music. I even began composing a new song last week.

I am currently working on a large illustration assignment that is going very well. Somehow, I always manage to find time to write for my blog.

I am very close to all three of my children. I have two sons who live with me (17 and 23) and they keep me busy shopping to fill our refrigerator. I play tennis and I swim several days a week.

How is that possible?

My explanation is that there are angels are all around me.

Coral Rose

© Judy Unger and http://www.myjourneysinsight.com 2014. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Judy Unger with appropriate and specific direction to the original content.

Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 3 Comments

MY JOURNEY IN SIGHT – PART 7

This picture was taken on the day my blood was drawn.

This picture was taken on the day my blood was drawn.

My serum drops arrived on a Monday morning. My son burst into my bedroom to announce, “Mom, there’s a big package at the door for you!”

Only a week before, I had driven for two hours to a distant facility to have 21 vials of blood drawn that would be used to make these revolutionary eye drops.

Of course, the dry ice was far more interesting for my son as I removed the seven precious bottles of serum. I put six in the freezer and one in the fridge. I wondered how long it would be before I could start squeezing the bottle and putting the tears in my eyes.

Serum Tears and boxI looked to see if there were any papers in the box but there were none. There were a few instructions on the bottle telling me to discard it after a week and to keep it refrigerated at all times.

By late afternoon, I checked the bottle in the refrigerator and it wasn’t frozen anymore. It was time to use them! The drops that went into my eyes were cold, slimy and kind of shocking. They were definitely refreshing. I imagined my eyes were soothed every time I blinked.

The instructions on the bottle said to put one drop in each eye every two hours. I didn’t follow a tight schedule, but used them whenever I saw the time had gone by. By bedtime, I had used them at least 4 times.

I could hardly believe that bottle contained my own body fluid!

Serum bottle

That first night held a momentous event for me. I performed for the first time in eight months.

Before my dry eye condition overwhelmed my life, I used to perform weekly at an open mic venue. From the moment I walked in, everyone there welcomed me back with open arms.

Singing in front of an audience was still difficult with my eye discomfort. But I could tell that I was able to handle my pain much better since I had been on a “healthier track.” I wasn’t looking at my eating as a diet, even though I had started to lose a few pounds. Certainly, I had gained a lot of weight in the months I hadn’t gone and it took courage for me to put myself out there.

Playing at Kulak's 12

Before I began performing, I mentioned to the host that I had “eye issues” and it was difficult for me to open my eyes.

Butterfly of death

Unfortunately, everything changed the next day.

Just after I woke up I noticed my vision was cloudy. It was rare for me to go back to sleep, but I did so because I thought perhaps I was just tired.

By evening, I finally acknowledged that something was wrong as the fog in my eyes became more and more dense.

Now I was far less excited to continue putting the serum drops into my eyes. I wondered if perhaps this was something I needed to stick with. Maybe my eyes were healing this way?

This post on my Internet Dry Eye forum really gave me a lot of hope.

This post on my Internet Dry Eye forum really gave me a lot of hope.

I posed my question to the people on the dry eye forum I belonged to. One woman responded and said she had experienced a little discomfort at the beginning but after that she was vastly improved. I continued using the drops.

The next day, my pain was even more intense. Clearly this was not normal. I tried calling the pharmacy that made them. Their phones were not working.

I felt so discouraged and disappointed. (Eventually, I did reach them and they took down information from me to look into whether my drops had a problem. I never received a call back.)

It was very hard for me to concentrate and do my illustration work. All I wanted was to be in the place I was before I began using the drops. About a year ago, I was dealing with this level of severity almost every day. Now I appreciated my progress.

By Friday, I had already stopped using the tears and prayed things would get better. A friend told me that my eyelids and face looked swollen. I decided that I should to be checked by an eye doctor.

But when I called, I was told there were no appointments available.

I continued to insist that I needed to be seen and was given a lengthy evaluation over the phone. I listed my symptoms and the receptionist seemed unconcerned. She still would not give me an appointment so I told her I wanted my doctor to call me back.

Two hours later, the receptionist called me back and said; “Your doctor said she doesn’t need to see you today.”

I was livid! I felt smoke coming out of my ears and eyes. At that moment, I hated my doctor.

I took a deep breath and continued to insist upon an appointment. My heart was pounding while I was put on hold. The receptionist finally came back on and said coldly, “Okay, you can come but you’re going to have to wait a very long time.”

I hung up and began crying. I decided to call a good friend before leaving in order to calm myself.

My friend used to work in a doctor’s office. She said, “Don’t take it personal. You were being screened out and that’s done regularly. Your doctor probably wasn’t even told about your situation.”

Scared Eye

An hour later, I was in the waiting room. I was prepared to wait a long time and certain I had done the right thing by coming in to get checked. I was the last patient before lunchtime and the examining room area was deserted. Finally my eye doctor came to get me.

I told her how much I appreciated her fitting me in during lunchtime; I didn’t want to appear angry.

I described the pain and fog that began only a day after using the serum tears. My eye doctor said, “I told you serum tears weren’t a cure.”

But I had many questions for her because in the last few days I had learned a lot. It turned out that my bottle was only a 20% solution and I had heard that wasn’t nearly as effective as 100% serum. A reaction was unheard of.

She replied, “Well, if they bothered you with 20%, then it would be even worse if they were 100%.”

I asked her if the saline could have bothered me. She said it definitely wasn’t the saline. But it did look like I might have contaminated the bottle. I had touched it to my eyelid whenever I put the drops in. It sure would have been helpful to me if there had been clearer instructions.

Did I have an infection? This cornea doctor would soon find out.

As she put the yellow dye into my eyes, I gasped because it burned so much. Only a moment after looking with a magnifier, she announced in a chipper voice, “I don’t see any problem at all; your eyes look very good actually.”

Now I felt embarrassed for insisting upon this appointment.

I walked out of the building and didn’t know what I was feeling. I was glad I didn’t have anything wrong, but at the same time I began to doubt myself. I was such a demanding patient.

And my butterfly of hope was smashed to the ground.

dead butterfly

Facebook Post on Blog

The support I received from my Internet group helped me so much.

Only the week before my tears had arrived I had rallied to encourage another woman to get them prescribed by her doctor. After my ordeal, this woman was very concerned about whether to move forward to get them.

She and I began corresponding privately. I had made a new friend and her name was Susan.

Susan and ITo be continued . . .

Playing at Kulak's 11© Judy Unger and http://www.myjourneysinsight.com 2014. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Judy Unger with appropriate and specific direction to the original content.

Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 1 Comment