PAINFUL MEMORIES ARE IN MY PAST

Following my final treatment, I rang the bell in the radiation waiting room. There’s a video of this moment at the end of this post.

I put a lot of thought into choosing the title for this story.“Painful memories are in my past” are lyrics from my song “In the Past.” That line worked really well for two distinct stories intersecting. One was about my cancer treatment. The other related to reconnecting with the cardiologist who treated my deceased son at this same hospital 32 years earlier.

I loved the waiting room, especially because the music was soothing and meditative. There was even a piano.

The final step of my breast cancer treatment was receiving radiation daily for one week. I knew exactly where I was going, since two weeks earlier I had been prepped.

The first day was unexpectedly challenging. I was used to lying still on a hard table, but I had a sore shoulder. Putting my arms high up over my head in a stirrup was immediately uncomfortable. After ten minutes, I felt a gnawing pain pulsing through me. I stayed still, but as the pain intensified I broke out in a sweat. I asked the technician when I could move, but he kept telling me I had to wait. Even when I was able to stretch briefly, it didn’t help. There wasn’t any position that was comfortable and I couldn’t get up.

This went on for almost two hours and I had to hold my breath consistently when I was instructed. I used visualization techniques to help myself through the pain.

With positivity, I found the level of perfectionism impressive. The radiologist wanted to target exactly where the radiation would go. The technician told me that the equipment in this room cost seven million dollars. And there were seven rooms!

On that Monday, I received more tattoo markings and my first treatment. I drove home exhausted and made a mental note to take ibuprofen ahead of time.

Tuesday was another difficult day. I had to be there by 6:15 am. It was dark and I was driving carefully in my lane, when a loud thwack shocked me. Another car had just changed lanes right into my door!

I couldn’t make out the license plate while driving. My heart was pounding as the vehicle that hit me sped off. I made a snap decision to continue onward to my appointment.

Thankfully, I wasn’t hurt. My car was drivable and not too badly damaged. But this was certainly an annoyance. I sure didn’t need a hit and run to deal with!

I was so relieved that I had made it to my appointment. As I put on my gown, I told a technician what had happened. He said, “Hey, even if you missed it – never worry. We would fit you in.”

The week flew by and the treatments became easier each day. They lasted approximately 15 minutes. I would gown up and lie down in the correct position. I even remembered the instructions to turn my head sideways, so my head would be further away from the radiation beam.

When instructed, I held my breath as the machine hummed. I imagined I was swimming underwater or preparing to sing a really high note.

Finally, Friday arrived and it was my last day. As I got off the table, the technician congratulated me and I was given the clear plastic breast cup strapped on during those treatments.

A memento that I’m not saving.

It was quite an honor to ring the bell in the waiting room. I was so thrilled that this chapter was now over. And when the room erupted in applause, I was incredibly moved.

As far as painful memories went, I had already put it behind me. All of this was now in the past.

Link to more about my song “In the Past:”

Now it was time for me to address other painful memories from my past.

The night before, I wrote a two-page letter to Jason’s former cardiologist, Doctor R. I planned to find his office and deliver it with a book on my last day of radiation.

Unfortunately, I was disappointed. After walking almost a mile to a distant building from where I was parked, a receptionist told me he had retired.

But I was determined. I was on a mission and would find him another way.

The next day, I awoke with a wonderful feeling of freedom. It was rare, but I didn’t have any chronic pain. I had finally healed from the many things I’d gone through over the past six months.

I was ready to find a way to contact this special doctor.

It didn’t take long. I went on Google and there was an option to have his address and phone number “unlocked” for $5.

Once I had his number, it was harder. I could just mail the book and letter, but what if it wasn’t the correct address? Making this cold call required courage.

I took a deep breath and a woman answered. I introduced myself and told her my son was a former patient of Dr. R. I waited as she called him to the phone.

His voice was very recognizable. Our conversation began by him saying he had received my phone message and certainly did remember me.

He asked how I found his number, and I told him. “Do you have my social security number, too?” he said with a slight chuckle. I nervously laughed and assured him I didn’t have it.

I couldn’t help but wonder if he would have ever called me and felt badly that I had “stalked him.” I decided to let those feelings go.

I told him that I appreciated how caring he was during the five years of Jason’s life. The fact that he spoke at Jason’s funeral was something I’d never forget. He mentioned that the painting I gave him hung in his office for years and I was touched to hear that.

He talked about how doctors today don’t understand the level of dedication involved. They only looked forward to leaving work and getting to retirement.

It turned out he was not retired. At the age of 79, he still worked part-time at two other facilities. Currently, he had a long commute filling in for another cardiologist that was out sick.

We talked for about fifteen minutes. It was interesting to hear that he had kept up with all the medical advancements through the years. He said he sometimes heard from former patients that were in their forties now. I shared with him that I had a blogging friend close to my age with Jason’s same heart defect. She had contacted me after reading Jason’s story. He was amazed.

Whenever I mentioned Jason, my throat closed up and I couldn’t speak. It was an exercise in swallowing tears and forcing myself to get the words out. In between tearful pauses, I shared about my focus on healing and grief. But most importantly, this was how Jason lived on for me.

I let him know I was mailing him a copy of my book and profusely thanked him for taking my call.

I felt strangely calm after our conversation. I actually wasn’t sure what I was feeling.

I rewrote my letter and put the book in an envelope. I might hear back from him after he received it, but I had no expectations.

I thought about how choked up I had been on that call. After so many years, I still cried remembering my son.

But I was thankful that I had healed – and especially proud that I was able to address those painful memories from my past.

I realized then that my tears weren’t about sadness – they were about my gratefulness.

Things that made me cry, gave me wings to fly.

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GONE FOR YEARS AND I STILL CRY

Lyrics from my song “Angel in the Sky.”

I had a very early appointment at the hospital to prepare me for my upcoming breast cancer radiation treatment. I would get a CAT scan and tattoo markings, and my radiation was scheduled to begin in two weeks.

I was relieved that traffic was light, because I’d spent a lot of energy worrying about how much time it would take getting there. I had hardly slept, but that was probably due to the estrogen suppressant medication I was taking. I would be on it for five years and hoped I’d adjust to the side effects soon.

A rush of melancholy overwhelmed me as I drew closer to the facility. This was actually the same hospital where my son Jason had died 32 years ago. It had a specialized cardiac unit and I’d spent a lot of time there. Now it was also the only radiation center though my medical plan that served the Los Angeles area.

While waiting at a stoplight, I noticed a familiar restaurant where I used to eat when Jason was undergoing his countless procedures. I felt a lump in my throat and brushed away a few brimming tears.

I parked and was glad I had gotten there early. When I passed a sign that said “Cancer Center,” I felt a pang. The receptionist was extremely kind and validated my parking stub, which was nice.The radiation technician patiently explained everything about this appointment. I put on a gown and was soon lying on a hard table with special cushions for my butt and legs. The metal arm holders were uncomfortable. Still, I smiled and allowed peace to fill me as the time ticked by.

When the CAT scan was finished, it was time for the tattoo. I felt a sharp sting and then it was done. In two weeks, I would return for my one week of daily radiation treatments.

As I was leaving, I couldn’t shake the emotions that were bubbling up. Only two days earlier, it had been Jason’s death anniversary – so that made sense. But then I surprised myself.

I walked over to a receptionist and asked her a quick question.

I said slowly, “I was wondering if you could tell me if a certain doctor still works here. He was my son’s former doctor.”

In my head, I truly wanted to say that he was my deceased son.

The receptionist couldn’t find him in her system. But she was persistent and told me she would look on Google. She repeated the doctor’s name and said, “Is this him?”

It was!

She wrote down a number on a scrap of paper. “Try calling this and it should connect you to his office.”

I thanked her. I was overwhelmed with emotion as I headed to my car.

I am mostly healed up from my August 23rd lumpectomy.

I came home from the appointment feeling very emotional. I took a deep breath and called the number on that scrap of paper. It went to voicemail and I left a detailed message.

A lovely crystal gift from a blogging friend shimmers next to me. I’ve been blessed to receive so much support.

A supportive card I received.

A few days later when no one returned my call, I figured it probably wasn’t the right number. It was time for me to do some research.

I could always mail this doctor a letter. I wanted to share with him that he was actually part of Jason’s story – the one that I published as a paperback book named “Beside Me Always.”

I could enclose the book with a letter to him. But I needed an address.

For thirty minutes, I was on the phone with different departments. Each one had long repetitive menus and when I’d finally reach a live person, they weren’t able to help me.

I was on my fourth call and ready to give up when a woman came on the line. I told her everything, that I hoped to reach this wonderful cardiologist who had helped me through the five difficult years that Jason suffered with his congenital heart issues.

She said gently, “I’m going to do something I’m not supposed to do. I’ll send him a message to call you.”

I thanked her profusely and waited. I heard clicking as she rapidly typed a message. “I’m going to read this back to you,” she said.

“I have a woman here that would like to connect with you. She says you took care of her son who passed away 32 years ago. You even spoke at his funeral. There is much that she would like to share, including the fact that she helps other grieving people.”

She finished reading and told me she was crying. Tears were pouring down my cheeks and I couldn’t hold back my choking sobs. I tried to speak and it was a garbled mess.

It was unbelievable to me. Here I was crying on the phone with a total stranger.

I cleared my throat and blew my nose. I said “I just wish I’d thought to contact him sooner. I gave him a painting one month after Jason died – and that was the last time I saw him.”

I gave the original painting for this magazine cover to Jason’s cardiologist.

We both struggled to find composure and then she asked if she could share a similar story with me. For another twenty minutes we conversed and it was incredibly touching.

After this phone call, I wondered how it would be to speak with this wonderful doctor. Hopefully, it would happen. It would be a beautiful story that I looked forward to writing.

This experience showed me how profoundly Jason continued to influence my life. His healing magic surrounded me.

The title for this blog post is a lyric line from my song “Angel in the Sky.” Recently, I released an album with a new vocal version for that song. Clicking on this image is a link.

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VOICES OF HOPE AND RESILIENCE – 9/28/24 INSIGHT TIMER

There’s a lot to unpack with this incredibly heartfelt and vulnerable Zoom session related to the topic of dealing with cancer.

I am a meditation music creator on the app Insight Timer. This past year, I joined a Facebook support group for fellow Insight Timer teachers.  The “Ask Your Guides” has been something I’ve enjoyed participating in. Usually, I talk about the music I so passionately create. This was a completely different area for me to open up about!

I’m sharing this recording with the hopes than anyone out there struggling with cancer might take away some of the inspirational moments. I certainly did!

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BLUE has been my theme. Every night for two weeks before my surgery, I swam in my apartment pool. It was meditative and pure therapy. Before and after surgery, I was surrounded by BLUE! Steadily, my lumpectomy surgery date approached. What was I feeling? I wasn’t really sure, but I was amazed that I wasn’t nervous.

I went for a dye injection the day before. I thought I’d be out of there quickly, but it turned out to be a much longer appointment. I spent three hours lying on a hard surface with a camera over me. The technician explained that this would help the surgeon find my lymph nodes more easily the next day. He was so nice, and even put my own music on for me to listen to.

Whenever I was asked about what I do, I effusively shared about how music transformed my life. The radiologist came in and we had a lovely conversation about meditation music afterwards. She told me she played a zither, which I’d never heard of.

The next day, was a blur. I had to leave the house at 5:15 a.m. I still wasn’t nervous and I looked forward to getting it over with. It helped that my good friend, Stacey drove me. I hugged her goodbye and surrendered to the flurry of medical personnel hovering over me. Finally, it was show time and an oxygen mask was placed over my face.

I emerged into the groggy world of post-op. My first awareness was relief that it was over. My son drove me home. I walked slowly from the car and was incredibly grateful to be in the wonderful cocoon of my bedroom.

I spent the rest of that day sleeping off the anesthesia. In the evening I felt euphoric, without any pain whatsoever. Was such a thing possible? I sent out an email update and proudly announced that the worst was over.

The next day, I felt well enough to go with my son and his girlfriend to the supermarket for an outing. I even began planning to record guitar the following morning. I first had to finish editing a lower guitar track I would record with. I stayed up late working on that.

I came home with a drainage tube underneath many bandages. At the end of the tube was a rubber bulb that had to be regularly emptied and measured. It was annoying and I had an appointment scheduled for its removal a week later.

The liquid in it was blue – as was my pee for a few days (TMI!).

The second evening after my surgery wasn’t as easy. Ice and Tylenol seemed to help with the dull ache and cramping on my side, but I was frightened by the intensity of sudden sharp pains.

All the love from my friends and family surrounded me with comfort.

However, occasionally I could feel irritation breaking through, when something triggered me. Pain had lifted my filters.

I was hurt when a good friend canceled on me twice the week before. I had even changed plans to be available for her. I didn’t want her to feel guilty, but when she reached out to check on me, I let her know that I was disappointed we hadn’t gotten together.

She texted me back and said she was available to come right over. Did I want her to visit?

I told her it would be fine, even though it was really painful to get dressed. I pushed through the pain. What a difference this was from the day before when I felt almost normal!

I went with her for a little outing. We sipped some juice and came back to my house. It was my second day and I could take a shower. But first, there were a lot of bandages that needed to come off. I asked her if she could help me.

I moaned and whimpered with the sting of tape pulling off from sensitive areas. How would I have done this myself? Certainly, it wasn’t something I would have asked my son to do. I marveled how being honest and telling her how I felt had made such a difference. If I hadn’t expressed my honest feelings, she might not have come over.

She massaged my shoulders, and after she left I was eager to take a shower.

A small portion of tape still remained where the drainage tube entered my body. I turned on the water, stepped into the shower, and the pain began to intensify. I cupped my aching breast and cried. The grotesque sutures and missing breast tissue was traumatic, but it was the pain that stunned me. I yelped and cried out, and could not muffle it.

After the shower, I collapsed on my bed and the pain slowly ebbed. It was Sunday night. Normally, I played guitar and sang for my live stream on Insight Timer. This was not a Cinderella moment like it was the week before. But I was sure I would be back at it, hopefully, by the following week.

Dreaming of when I can swim again. It would be at least a month.

The next morning, I called the surgeon’s office. A good friend had encouraged me; it made sense to ask if this was normal. I was given an appointment to come in the following day.

Talking to friends of mine that have gone through breast cancer gave me lots of information. One friend particularly remembered the drainage tube as being horribly uncomfortable. She said, “You won’t believe how deep it is inside of you, and when they pull it out, you will feel fine!

I was able to drive myself to the appointment. My surgeon checked everything and told me I would still have to wait two more days for the tube removal. Otherwise, the fluid would build up and require a needle to remove it.

And then he told me he had received pathology results back sooner than expected. “It’s great that you came in,” he said, “because now I don’t have to call you.”

He continued. “Everything is clear. I removed four lymph nodes and they showed no sign of cancer. The lesion was much larger than on film, but you’re stage one and most likely won’t require chemotherapy. In two weeks, you’ll see an oncology doctor to go over your treatment plan.”

The anticipation of waiting for results was over. Tears spilled from my eyes. I bought myself a blended coffee and savored it as I slowly walked to my car.

I was determined to deal with my pain for two more days. Ice was my best friend. I had resisted taking stronger pain meds, but that night I did. I slept away the next day, but woke up to write this post.

I made some adjustments to my thought process. Over and over, I had been telling myself how much I hated that tube.

Now I fondled the tube and spoke to it. I told it that I was thankful it was doing its job to drain my excess fluid.

I had coped with so many challenges over the last few months. I felt acceptance for whatever I would face with this cancer journey. But most notably, I wasn’t afraid.

Ironically, I was editing a vocal for my next arrangement, and the lyric line that stood out was: “It all changed, when I let go of fear.” The song was named “Clear.” All of a sudden, my life became clear!

The spirituality of my music continues to heal me.

I had no doubt that the future held more pain and challenges for me. But I was given a reprieve. It seemed easier to accept whatever would happen, because I have been so blessed already.

There was still so much more music that I wanted to record and finish. When all of this was over, I could still play guitar, I could still speak, and I could still sing.

I was incredibly grateful.

I had lunch with both my brothers two weeks ago. It was unbelievably special to me. It had been three years since we’d last gotten together.

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