Tag Archives: Advocacy

A LOT ON MY SHOULDERS

I have wondered if someday I’ll be an “open-faced sandwich”. Thinking this isn’t helpful. It starts to feel that I’m wishing my parents were gone. I was actually thinking it meant my kids were more independent. The truth is, I just need less squeezing. I’ve decided that my husband is the pickle, and Rosa is the toaster. Continue reading

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FROM MOTHER BEAR TO DAUGHTER BEAR

My mom was crying. She continued sharing, “She told me that I will move – it is for sure! They’re not going to punish me for falling out of my wheelchair; they’re going to make sure I’m with dad, and soon! I am so happy – I believe her. She was so nice to me. I am definitely next on the list. She said she spoke with everyone in charge and they all in agreement about this! Isn’t that wonderful? Continue reading

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I COULDN’T SAVE MY OWN CHILD; WHAT WILL SAVE ME?

I remember how I felt so useful and so hopeful. I was elated that my mother had turned a corner. And then within a flash of those thoughts, I was literally “flat on the floor” pounding it with anguish. I wanted to pull out every single hair on my head!
Here I was – super genius and devoted daughter, and I couldn’t save my own son!

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MUSIC – NOTES OF SILENCE, NOTED IN MY LIFE

You’ve given me confidence, comfort, and the ability to teach and learn. I love you more than anything else in the world – and remember my guitar – even if I ever let you down in my anger and frustration, and I blame you rather than myself – know that I will never desert you. Continue reading

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