Tag Archives: Advocacy

EVERY TIME I SEE A SMILE

On Sunday, I picked up a brand new Mac computer! My childhood friend, Steve, helped me decided which one to order. I had the computer shipped to him first so he could prepare it for me. I sent him a backup drive to work with. Steve set it up and added significant and fantastic music software for me. There was no way I could ever repay him for all the extras he added for me. Continue reading

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HEALING CAME AT LAST

I’m aware that I have a complicated life. However, because I’ve given myself permission to indulge my passions – well, I feel like I’m the luckiest person on earth. It’s not that I don’t have financial worries, responsibilities, or pressure. It’s just that I am so happy. The pain of grief is indescribable. It is suffocating, torturous, and excruciating. Even those words do not truly capture the feeling of wanting to escape from the world of the living. I have lived with that level of pain. Continue reading

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HOW SHE WAS BLESSED

I was having a lot of difficult deciding on what to name my post. What could pull everything together? Suddenly, I found my insight. I decided to name my post “How She Was Blessed,” which was a line from my new song. To have a caregiver like Miriam for my mother reminded me of that. But then, the revelation came to me after I corresponded last night with my dear friend, Magda, who suffers terribly from the progression of MS. Continue reading

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LONELINESS FILLED MY DREAMS

I was definitely wearing a “Super daughter cape” as I left my mother following her appointment. I wrestled with the “demon of dementia” and had won. My mother went from tears to joy as I steadily convinced her of the reality. As I drove home, however, I still had the familiar gnawing pain inside me. I wondered why I wasn’t more joyful that she had beaten the odds and survived her hip fracture without having surgery!
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