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Tag Archives: transposition of the great vessels
SHARING JOY AND MY HEARTACHE, TOO
At the moment, I have a lot of creative energy devoted to many pursuits at the same time. For certain, I feel pressure to market something that I could sell, which would allow me to continue my creative pursuits. At the same time, the need for writing therapy causes me to drop everything to update my blog.
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Tagged acoustic guitar, cardiac abnormality, child's death, childhood friendship, composing, congenital heart defect, creativity, Daily Life, death, death of a child, Friendship, grief, grief bereavement "Loss of a Child", GRIEF RELATED, guitar, heart defects, inspiration, loss, lovesong, lyric development, lyric writing, lyrics, Music, Ordinary Life, original songs, parenting, pediatric cardiac defect, performing, singing, songwriting, transposition of the great vessels, writing
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JASON MEANT “HEALER”
For me to enter a hospital so soon after my son had died following heart surgery was a huge challenge. Still, I manage to navigate a huge medical center to find her and her son. I stayed with her while her son had that surgery.
I think that was truly one of my most difficult days. I overcame my grief knowing that I was doing something where Jason would have been proud of me.
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Posted in Healing and Hope
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Tagged cardiac child, child's death, childhood friendship, compassionate friends, congenital heart defect, death, death of a child, doubt about becoming a parent, Friendship, grief, grief bereavement "Loss of a Child", GRIEF RELATED, having children, inspiration, loss, pediatric heart surgery, sick child, transposition of the great vessels, writing
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JASON MARK – HE LEFT HIS MARK
After writing almost every day for a month, I am finally ready to share my story about Jason. Jason was the child I had seven years after I was married. He was born with a serious congenital heart defect called “Transposition of the Great Vessels.” As with most heart defects, his was “one of a kind.” I was told only one in ten thousand children have a defect as complicated as his. He had surgery when he was two and a half months old. He had another one when he was five. He died following that surgery. Continue reading →
Posted in Death of my son, Jason
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Tagged cardiac child, child's death, compassionate friends, congenital heart defect, death, death of a child, grief, grief bereavement "Loss of a Child", grief bereavement "Loss of a Child" friendship, GRIEF RELATED, inspiration, loss, parenting, pediatric heart defect, transposition of the great vessels
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